Lived experience of lupus

This project wants to better understand what it is like to live with lupus (also known as systemic lupus erythematosus or SLE).  It will explore the physical and emotional challenges that people living with this condition experience, the impact it has on their relationships, and the coping strategies they use.

Lupus is a long-term, auto-immune condition that causes joint pain, skin rashes and tiredness. There’s no cure, but symptoms can improve if treatment starts early. As lupus is more common in women with an African, Caribbean, Asian or Chinese background, women from these communities are particularly encouraged to take part.

This research is being carried out by researchers at the University of Greater Manchester (formerly known as the University of Bolton) and will form part of a doctoral degree.

• Age 18+
• Diagnosed with systemic lupus erythematosus (lupus)

• Online

• Completing an online questionnaire (approx. 15-20 mins)

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