This project is looking to understand the views and perspectives on sharing and using personal health data during and beyond COVID-19.

It is being led by a team of researchers from The University of Manchester alongside other organisations including Groundswell and the National Institute for Health and Care Research (NIHR) Applied Research Collaboration Greater Manchester (ARC-GM).

By establishing a volunteer peer educator scheme, this project is hoping to increase research engagement and involvement from ethnic minority and other under-served populations.

  • Previous research has highlighted that certain communities are underrepresented in kidney-related research and that people from those communities are significantly more likely to progress to end-stage kidney disease.
  • Target communities for this project include:
    • socially deprived people of any ethnicity living in Salford
    • Pakistani communities in Oldham
    • Bengali communities in Rochdale.

This project is a collaboration between Kidney Research UK, Research for the Future, and the renal department at Salford Care Organisation (part of the Northern Care Alliance NHS Foundation Trust)

This project will bring together people living with chronic cough, healthcare professionals and researchers.  It will look at ways to raise the profile of chronic cough and explore ways to improve support for people living with the condition.

It is being led by the VOCAL team, based at Manchester University NHS Foundation Trust.

These sessions will capture people’s opinions on dementia therapies and will be used to develop further research looking to develop a range of culturally adapted interventions to improve cognitive function for British South Asians living with dementia.

The lead researcher on this project is a fluent Urdu speaker and able to translate, or carry out these sessions in Urdu.

It is being carried out by a team based at The University of Manchester

This workshop is part of a study looking to create a digital platform allowing people to have control of their personal health data so that they can decide how it may be used in the future.

It is being carried out by a team of researchers at the universities of Lancaster and Manchester.

Further reading:


This project is part of a study developing a new online tool for health care professionals to use when caring for people with diabetes.  Researchers want to make sure that patient views and experiences are included in the development process.

MyDiabetesIQ is a new online tool being developed by MyWay Digital health.  It will be driven by artificial intelligence (AI) and computer-based decision-making to help inform clinical decisions.

Involving patients in the development process means that researchers are able to carefully consider and address any concerns that people living with diabetes may have,  The workshops will cover ethical concerns, safety issues, using data from electronic health records, and how the system might be used in the real world.

No previous experience of research involvement or understanding of the technology is required.

It is anticipated that this two-year project will start in autumn 2021.


This project is looking to understand what information participants might need if they want to stop taking part in research before it has ended.  It is being carried out by researchers at the University of Leeds.

Participants will be reimbursed for their time.

This project is developing a research study that will test a new home-based physiotherapy tool, designed to be used on a smartphone or computer.  The team are looking for people to join an advisory panel.

This project is looking to explore and understand public and community perspectives around Greater Manchester becoming a member of UK CRIS.

UK CRIS (Clinical Record Interactive Search) is a new technology that can be used to transform information stored in patients’ mental health records into anonymised data.  These datasets can then be used by services and researchers to enable service improvements, inform further research and develop new treatments and care.

The numbers of doctors working in temporary positions (known as locums) in the NHS has doubled in recent years.

This research is looking to understand where locum doctors work in the NHS in England, what kinds of work they do, and how the use of locum doctors is organised. Findings will be used to identify ways to improve working arrangements and the quality and safety of patient care they provide.

It is being carried out by a team of researchers at The University of Manchester.